The parents of 12-year-old Halle Krawczyk of Salmon Arm received welcome news on Dec. 7, 2020 that the Medical Services Plan has reversed its decision and would fund her surgery in the United States for a rare cancer. However, the family is told they are still faced with at least $150,000 in additional expenses to be incurred during the six months in the U.S. throughout the surgery and recovery. (Contributed)

The parents of 12-year-old Halle Krawczyk of Salmon Arm received welcome news on Dec. 7, 2020 that the Medical Services Plan has reversed its decision and would fund her surgery in the United States for a rare cancer. However, the family is told they are still faced with at least $150,000 in additional expenses to be incurred during the six months in the U.S. throughout the surgery and recovery. (Contributed)

MSP to fund Salmon Arm girl’s surgery to combat rare cancer after reversing decision

Medical Services Plan reverses decision to not help with U.S. cost, parents still face $150,000 bill

Having a child diagnosed with cancer is an emotional roller coaster at best, but the Krawczyk family has just reached an unexpected high.

Monday afternoon, Dec. 7, 12-year-old Halle Krawczyk’s Vancouver oncologist informed the family that the Medical Services Plan (MSP) has reversed its decision to not fund Halle’s surgeries for ‘poorly differentiated chordoma,’ a rare and deadly cancer that affects one in 20 million people.

Although Carolyn and Matt initially expected the three required operations with a world-renowned surgeon in Pittsburgh would be more than $100,000, they learned Dec. 4 that the surgeries would actually cost a minimum of $325,000 Cdn.

With associated bills in Canada while not being able to work, along with hotel accommodation, transportation, medical insurance and more during the six months in the U.S., the family was looking at a total cost of at least $500,000.

They are thrilled with the news.

Although the Krawczyks are still left with at least $150,000 in immediate expenses following the MSP’s change of heart, Carolyn and Matt’s first concern was about those people who have been or will be donating money.

“We do not want anyone to be misled in their giving!” Carolyn wrote in an email to the Observer as soon as she received the news.

Read more: Salmon Arm parents raise funds for surgery to combat daughter’s rare cancer

Read more: UPDATE: Surgery, related costs increase fundraising goal for Salmon Arm girl

Read more: 2018 – Update: Drug for young Shuswap girl with cancer to be made available

Leading up to this, the family had been told that the doctor and his team in Pittsburgh are best qualified to perform the rare pediatric surgery. However, MSP had told them that the surgery can’t be funded because the Canadian policy is that if a doctor in Canada can do the surgery, then it won’t be covered in the United States, Carolyn said.

Although that might be a good policy for some surgeries, this one is different, she had said, noting that Canada just doesn’t have the experience. The U.S. sees many more cases of chordoma, with just five per cent of them pediatric. Halle’s form of chordoma is even more rare.

As well as two surgeries removing the rapidly growing tumours on two upper vertebrae and on the clivus behind her nose, she must also have a spinal fusion. Proton beam radiation following the three needed operations could then prolong her life indefinitely.

“We’ve got one chance, we don’t want to mess it up,” Carolyn said.

She explained that she and Matt have been focusing so hard on advocating for the surgery for Halle that tallying all the additional upcoming costs has been secondary.

“We’ve been in total fight mode to just try to get Halle help that we haven’t been able to focus on all the things we need to. Hopefully we can do that now.”

Right now, gratitude is the prevailing emotion: “The great news is we know Halle gets her best shot at beating this!!!”


marthawickett@saobserver.net
Like us on Facebook and follow us on Twitter

CancerSalmon Arm

Get local stories you won't find anywhere else right to your inbox.
Sign up here

Just Posted

Surrey Council Chambers. (File photo)
Surrey council approves $420,570 in grants for local arts, culture groups

This happened at Monday night’s council meeting, to cover 2021

In September 2018, former Vancouver Canucks player Dave Babych tees off at Northview Golf & Country Club in Surrey during the 35th annual Jake Milford Charity Invitational tournament. (File photo: Tom Zillich)
No ‘shotguns’ or banquets: Surrey golf courses pitch COVID-safe tournaments for 2021

With spring on the way, course operators book tournaments that will involve ‘tweaks and adjustments’

Investigators placed dozens of yellow evidence markers on the ground near the site of a fatal shooting in Langley City early Wednesday morning. (Matthew Claxton/Langley Advance Times)
UPDATE: 22-year-old man killed in targeted shooting in Langley

South Surrey vehicle fire may be linked to homicide: police

Members of the Surrey Fire Fighters’ Charitable Society picked up their new van from Mainland Ford in Surrey Wednesday (Jan. 27, 2021) after the society’s old van was stolen and damaged. (Submitted photo: Dylan Van Rooyen)
After thrift store van stolen and damaged, Surrey dealership helps out firefighters’ charitable society

The Community Thrift Store van was stolen in South Surrey in December

Surrey-raised actor Michael Coleman in some of the roles he’s played since the mid-1990s. (submitted photo)
Chat with Robin Williams helped send Surrey’s Coleman into world of acting

‘For me, it was a game-changer,’ says co-founder of Story Institute acting school

British Columbia Health Minister Adrian Dix looks on as Provincial Health Officer Dr. Bonnie Henry addresses the media during a news conference at the BC Centre of Disease Control in Vancouver B.C. (THE CANADIAN PRESS/Jonathan Hayward)
B.C. announces 485 new COVID-19 cases, fewest deaths in months

‘The actions we take may seem small, but will have a big impact to stop the virus,” urges Dr. Henry

Keith Thorpe/Peninsula Daily News
Search called off for small plane that went down in rough water south of Victoria

Plane bound for Port Angeles from Alaska believed to have one occupant, an Alaskan pilot

BC Place Stadium in a photo posted to cisc-icca.ca.
Roof of BC Place a stage for performers during online music festival

‘This will be the first time any artists have performed from the 204-foot iconic Vancouver rooftop’

Royal B.C. Museum conservator Megan Doxsey-Whitfield kneels next to a carved stone pillar believed to have significance as a First Nations cultural marker by local Indigenous people. The pillar was discovered on the beach at Dallas Road last summer. Museum curatorial staff have been working with Songhees and Esquimalt Nation representatives to gain a clearer picture of its use. (Photo courtesy Royal BC Museum)
Stone carving found on Victoria beach confirmed Indigenous ritual pillar

Discussion underway with the Esquimalt and Songhees about suitable final home for the artifact

Cannabis bought in British Columbia (Ashley Wadhwani/Black Press Media)
Is it time to start thinking about greener ways to package cannabis?

Packaging suppliers are still figuring eco-friendly and affordable packaging options that fit the mandates of Cannabis Regulations

RCMP. (Phil McLachlan - Black Press Media)
Driver crashes vehicle twice in one day near Princeton

Abbotsford woman, 29, wasn’t injured in either incident

Former Vancouver Giants forward Evander Kane is seen here in Game 7 of the second round of the 2009 WHL playoffs against the Spokane Chiefs (Sam Chan under Wikipedia Commons licence)
Gambling debts revealed in details of bankruptcy filing by hockey star Evander Kane

Sharks left winger and former Vancouver Giants player owes close to $30 million total

Othman “Adam” Hamdan, pictured in front of Christina Lake’s Welcome Centre, was acquitted of terrorism related charges in 2017. He has been living in Christina Lake since November 2020. Photo: Laurie Tritschler
Man acquitted on terrorism charges awaits deportation trial while living in Kootenays

Othman Ayed Hamdan said he wants to lead a normal life while he works on his upcoming book

B.C. Premier John Horgan wears a protective face mask to help prevent the spread of COVID-19 prior to being sworn in by The Honourable Janet Austin, Lieutenant Governor of British Columbia during a virtual swearing in ceremony in Victoria, Thursday, November 26, 2020. THE CANADIAN PRESS/Jonathan Hayward
Premier Horgan calls jumping COVID vaccine queue ‘un-Canadian’

Horgan says most people in B.C. are doing their best to follow current public health guidelines

Most Read